Tuesday, May 26, 2009

An Exciting Dr. Appt...

Today we took Grace to her renal appointment, to check in with her doctor about her kidneys. Her doctor was very pleased with how she is doing...she is growing and gaining weight which is very important for Grace. She now weighs 16 lbs 8 ozs. This is great considering that every time she gets a cold (which seems like every other week) she can't seem to hold down her food. Her kidneys are also stable and have been for many months now. They are still only functioning at 25 %, but they are stable! Her doctor also gave us the OK to start some solid foods with her. We just have to record what she eats and be careful not to give her foods with too much potassium. I am so excited, I can hardly wait to get home and try some cereal with her! We were not sure Grace would be able to have any solid foods because of her renal failure and strict diet, so we were so happy to get the go ahead! I don't have my hopes too high, as Grace does not do well with things her her mouth (bottle, nuk...) she tends to gag, so we will just start very slow and see how she does! Also, her Dr. told us that kids with renal failure tend to not be very good eaters and not very good at taking things orally. This may be true for Grace, but I am just excited to try, and if it doesn't work...Oh Well! I will let you all know how it goes!


  1. Congratulations on the great report!! I hope the eating goes well.

  2. emma has emanuel syndrome too, so i'm going to tell you how i get her to eat. we reuse the lil med dropper that comes in the gas drops for infants, we squezze the food in the side of her cheak that is the only way she will take it. if i use a spoon she will just push it back out or gag. so maybe you can try this way. congrats and good luck..