2 months ago
Tuesday, May 26, 2009
Today we took Grace to her renal appointment, to check in with her doctor about her kidneys. Her doctor was very pleased with how she is doing...she is growing and gaining weight which is very important for Grace. She now weighs 16 lbs 8 ozs. This is great considering that every time she gets a cold (which seems like every other week) she can't seem to hold down her food. Her kidneys are also stable and have been for many months now. They are still only functioning at 25 %, but they are stable! Her doctor also gave us the OK to start some solid foods with her. We just have to record what she eats and be careful not to give her foods with too much potassium. I am so excited, I can hardly wait to get home and try some cereal with her! We were not sure Grace would be able to have any solid foods because of her renal failure and strict diet, so we were so happy to get the go ahead! I don't have my hopes too high, as Grace does not do well with things her her mouth (bottle, nuk...) she tends to gag, so we will just start very slow and see how she does! Also, her Dr. told us that kids with renal failure tend to not be very good eaters and not very good at taking things orally. This may be true for Grace, but I am just excited to try, and if it doesn't work...Oh Well! I will let you all know how it goes!
Tuesday, May 12, 2009
This article was written about Grace!
Sunday, May 3, 2009
No time to blog lately, but finally a little time while the little lady is sleeping! We have had an exciting couple of weeks. UW-Whitewater had a sand volleyball tournament benefit for Grace "Hope for Grace". It was a lot of fun and it was a beautiful day! We appreciate all of their support!
Grace also got her first ear infection. She had tubes put in her ears when she was two weeks old and they have been working great until now. She is not feeling well and not getting much sleep at all. I am hoping the meds kick in soon and hopefully in a couple of days things will be better.
Grace is getting her hearing aid on Thursday and I am so excited. I hope she doesn't hate it! I also hope it makes a difference for her.
Today Grace had her first trip to Lake George. My parents have a trailer on the lake there. I grew up with my parents taking me there every weekend, starting when I was only a week old! It was a special day taking Grace there today. Hopefully it will warm up soon and then we will be able to go swimming and for a walk!
Grace will be 8 months old soon, where does time go? Here are some 7 month pictures: